Circadian Rhythm Archives - The KLS Project

Avner watching tv with the dog across his lap

The Conversation

I suppose that context always makes the difference. Talking to Avner tops the list of important things I do, especially during this lockdown. Absent any other external stimulation, I find that engaging conversation has a nearly magical ability to restart cognition. It may be my own confirmation bias, but I don’t think so. Avner has a ravenous appetite for information and analysis. I love that aspect of his personality. We

Afternoon Waking

April 20, 2020 I’m doing something different today. I’m writing as Avner takes his guitar class in the next room. I’m also writing about today, not the events that brought us to today. We are all sheltered in place. The self imposed isolation affects us all differently in interesting ways. We’re all a little less productive. I’m definitely feeling stir crazy and Barbara is feeling stressed for any number of

I undertook The KLS Project as a labor of love and a personal memoir of our family’s journey with Kleine Levin Syndrome. I have been writing about KLS for since 2017, recording my memories, posting questions where they might produce an answer and eventually answering many of those questions myself.

Our journey is unique. Yet, the National Organizations for Rare Diseases (NORD) estimates that about 20% of people have a rare condition. Even more have learning disabilities and struggle to access education and the goal of a Free Appropriate Public Education.

Ultimately, I write my story about the challenges of parenting. Some aspects of the story contain exceptional circumstances but most of the solutions come from love, honesty and constantly assessing expectations.

You may want to read these posts in chronological order, but nothing says that you have to.

If you are wondering. The child in the header photo is not my child. It is a stock photo.

Category: Circadian Rhythm