Useful KLS Links

sleeping boy

These useful KLS links have been helpful to me when researching Kleine Levin Syndrome. I hope they will be helpful to you as well.


The Kleine Levin Syndrome Foundataion

The Hypersomnia Foundation

National Organization of Rare Diseases


Dr. David Rye

Dr Emmanuel Mignot

Dr Bobbie Sue Hopkins

Dr Isabelle Arnulf (French)


Stanford KLS study – Currently recruiting

Kleine-Levin syndrome: a systematic review of 186 cases in the literature.

Long term cognitive deficits in Klein Levin Syndrome.

Social Media Hypersomnia space This is a space that my wife and I curate for information about hypersomnia, including science and personal experiences about Kleine Levin Syndrome, narcolepsy and Idiopathic Hypersomnia (IH).

KLS Foundation private support Faccebook group.

Hypersomnia Spectrum Group on Facebook

Other First Hand Accounts of Families with KLS is one of the best firsthand accounts of what it’s like to live with a child who has KLS. The logging information and the videos are very informative and tragically very familiar to what we experienced.