These useful KLS links have been helpful to me when researching Kleine Levin Syndrome. I hope they will be helpful to you as well.
Dr Isabelle Arnulf (French)
Stanford KLS study – Currently recruiting
Quora.com Hypersomnia space This is a space that my wife and I curate for information about hypersomnia, including science and personal experiences about Kleine Levin Syndrome, narcolepsy and Idiopathic Hypersomnia (IH).
Other First Hand Accounts of Families with KLS
KleineLevinSyndrome.co.uk is one of the best firsthand accounts of what it’s like to live with a child who has KLS. The logging information and the videos are very informative and tragically very familiar to what we experienced.