My son’s greatest challenge every day is waking up. Kleine Levin Syndrome (KLS) changed my family’s life. Kleine Levin Syndrome is a poorly understood disease that’s marked by recurring episodic symptoms of hypersomnia, derealization and mood changes that are not yet fully explained. What that really means for our family is that I’ve been speaking to doctors about the possibility of KLS, progressively moving towards a diagnosis for my son
the second poem of a series of poems that I wrote in 2017 following my son’s diagnosis with Kleine Levin Syndrome. Imagine, that something as simple as a yawn could strike terror in your heart. Each yawn telegraphed to me that we would lose Avner to sleep again and we never knew if he would be back as himself or The Monster that occupied his body during episodes.
It occured to me, that maybe we have been reading this story of the binding of Isaac all wrong. It’s not a test of Abraham’s will, or devotion or even his ultimate morality. It’s not a test at all. Through Abraham’s eyes it’s a journey of the father who faces an impossible task regarding a child he loves. Abraham has no choice in the matter. His only option is to move forward through the horror ahead.