Me dressed as a pirate

Blindsided

This night owl stuff had to stop. Not only wasn’t Avner waking in the morning. He was potentially violent when we tried to wake him. He would lash out with hands or if someone was at his feet, he would kick. At the same time, it was evident that Avner was waking at night to eat. Sometimes, he would deny it. We would find plates and bowls under his bed, along with sport drink bottles. On one occasion, he even drank most of a bottle of maple syrup.

Avner, Barbara and me on a shore excursion

Knees and Toes

It started when Dr. Derikson suggested that my original problem was likely caused, not by the bony growth in my toe, but a bone infection. I had to consider that I was possibly headed towards an amputation of the toe, but there were several things to try first, and so I gave myself over to treatment.  In the intervening months, I became an expert in wound care. I learned how

Jon Barbara and Avner in a selfie image

Life Before we Knew KLS

In hindsight, early 2016 started the steep decline in the quality of all of our lives. As parents, Barbara and I failed to recognize the symptoms of Avner’s decline as a medical problem. The changes and challenges came so fast that we pivoted from crisis to crisis. It feels as if we were the frogs in the slowly warming pot, about to boil to death without realizing the clearly present danger.

Father and Son in BSA uniforms

Everything Changes at Once

In January of 2016, Avner began to change. He became secretive and withdrawn. He was very irritable. Suddenly, he went from struggling with English to struggling in most classes. We worried. We also assumed the cause was puberty.

Jon & Richard at the finish line

Rocketman

The first Rocketman Triathlon was run on May fifth 2013. It was my first triathlon. I said that I would be happy with a time under four hours. I finished in just over three and a half hours. My friend Richard joked at the time, “next year in under three hours.” I was heavy, but clearly fit enough to complete the race. In August of 2014, I developed a blister