Jonathan and his friend Leonard planking.

Seeing Some of the Worst Symptoms of KLS

Avner would become mute and disconnected from everything else around him. On one occasion, he left the Scout House to sit on a bench outside. When our Scoutmaster, Crill and I tried to speak to him, he refused to acknowledge us. I tried to get him into my car at the end of the meeting. Instead, he got up and started walking towards home, only a mile away. I called Barbara from the Scout House to let her know that Avner was walking home. He walked past her which worried us both, but eventually turned around and came inside.

Avner on the makeshift stretcher

Going Downhill

Rural Georgia is no place to have a medical emergency on a weekend. The only hospital is small. The emergency staff was sparse and equipment was minimal. The first task after providing insurance information and identification was getting someone to offload Avner from the bus onto a gurney.

Me dressed as a pirate

Blindsided

This night owl stuff had to stop. Not only wasn’t Avner waking in the morning. He was potentially violent when we tried to wake him. He would lash out with hands or if someone was at his feet, he would kick. At the same time, it was evident that Avner was waking at night to eat. Sometimes, he would deny it. We would find plates and bowls under his bed, along with sport drink bottles. On one occasion, he even drank most of a bottle of maple syrup.

our wrecked van

The Camporee

As we got closer to home, a car in front of us stopped to wait for a break in oncoming traffic. I stopped a safe distance behind. Seconds later, the rear windshield exploded, showering everyone with glass.

Jonathan and Avner in Scout uniforms with OA Brotherhood sashes

Warming Up for the Inevitable

Avner had previously encountered an ADHD medication “generic equivalent” that gave him extreme side effects. The reaction was so violent that we filed a report with the FDA about the medication. Apparently several other patients had enough problems that the medication was removed from the list of generic equivalents for Concerta (a longer acting form of the same medication in Ritalin).