• The KLS Project

    A Parent's Memoir of Hypersomnia

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Day: September 7, 2020

Home 2020 September 07
My son, Avner

Overcoming Doubts about Kleine Levin Syndrome in my Writing

  • September 7, 2020
  • Jonathan

My apologies for the recent hiatus in my writing. I had to gather my thoughts about the next part of our family’s story. It  both drains me emotionally to revisit some of our darker days and I think it’s important to cover the details of this period as accurately as I can. As a memoir, I understand that much of what I share is my own subjective account of our

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About This Site

I undertook The KLS Project as a labor of love and a personal memoir of our family’s journey with Kleine Levin Syndrome. I have been writing about KLS for since 2017, recording my memories, posting questions where they might produce an answer and eventually answering many of those questions myself.

Our journey is unique. Yet, the National Organizations for Rare Diseases (NORD) estimates that about 20% of people have a rare condition. Even more have learning disabilities and struggle to access education and the goal of a Free Appropriate Public Education.

Ultimately, I  write my story about the challenges of parenting. Some aspects of the story contain exceptional circumstances but most of the solutions come from love, honesty and constantly assessing expectations.

You may want to  read these posts in chronological order, but nothing says that you have to.

If you are wondering. The child in the header photo is not my child. It is a stock photo.

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